Welcome to Tyra's Blog


Tyra is a very brave 3 year old girl from the Isle of Wight who
has stage 4 Wilms syndrome (if you want more info there is plenty on the net), This means that she has a tumor on her right kidney (well there's no kidney left it's all tumor 11cm big) and also cancer in her lungs. Here on her blog you will be able to follow her progress and if you would like you can help her parents Vicky and Steve with the huge costs related to her treatment, you can help by using the donate button to the right.



Thursday, August 26, 2010

Had to have a blood transfusion today, went well and she was so good. Tests tomorrow to see if it has worked.

Tuesday, August 24, 2010

Waiting for southampton hospital to confirm when the ultra sound is to check Tyra's artery for cancer. They're not being overly forthcoming with info at the moment, which is frustraiting!

Saturday, August 21, 2010

Had a good night slept really well. Waiting to hear when her echo on her artery will be before the operation. (this is to find out if the cancer has spread into the artery) as the surgeon wants to know before he starts to operate.

Tuesday, August 17, 2010

Getting ready to go to southampton in the morning for meeting with the surgeon, not going to be fun him telling us what can go wrong but I suppose they have to! On count down of last few hours till birthday, nice pile of prezzies sat waiting to be opened by her first thing :-D

Monday, August 16, 2010

Blood results bad! transfusion on hand at st mary's....got to keep a close eye on her as she could go down hill fast, has a Hb of 65 and this is 5 under the minimum for a transfusion....however because she is not lathargic they're holding off

Saturday, August 14, 2010

Hair definately falling out though not as fast as last time. Had quite a good night she almost slept through but a bit restless. A bit grumpy today but had a busy day being prodded and poked yesterday so only to be expected.

Friday, August 13, 2010

Back from hospital, CT scan went ok not got results yet have asked hospital to E-mail copies of the scans when they have them. Chemo went ok too but she's quite wiped out now and very tired.

Thursday, August 12, 2010

Message from Katie Mairis

Hi Vicky. I have been thinking about your recent dliemma of funding and finance.... I sell greetings cards, gift wrap etc from home.... there are a few problems with my website at the moment, but when it is up and running I am happy to donate 15% of anything I make from people who say they are supporting you.... of course, I can put catalogues out to people who want them regardless of the state of my website!!
7.30am ferry to southampton tomorrow for CT scan and chemo. Got to be sedated for scan, really hoping we get the CT scan results before we have to come home!
Hair seems to be falling out again we'll have to see how bad it gets.

Wednesday, August 11, 2010

Blood redults

Blood results in


Haemoglobin: 71 so may need a transfusion still got to keep an eye on her.

White blood count: 1.9 gone down

Neutrophils: 0.4 gone up by 0.2 but still neutrapenic

Platelets: 351 down by 74.

not much change really though good that her neutrophils have started to go up.
Blood tests due again today, not sure what time yet lets see if she's still neutrapenic.

Tuesday, August 10, 2010

Offer of Car drawing please see details

Tom Wheatley, automotive artist, will donate his £50 fee to Tyra's fund.

If You know someone who would like an original drawing (size A4, colour or black and white) of their beloved car, new or old, perhaps as a birthday present or for Christmas.

See http://notablecarrot3.deviantart.com/gallery/#_browse

http://luvadubdub.skynetblogs.be/

This offer is only available to the first applicant. Payment to be made 50% up front, the rest on receipt of the drawing.

Please contact Tom asap at luvadubdub@live.fr or through facebook.

Notablecarrot3's Gallerynotablecarrot3.deviantart.com

Art - community of artists and those devoted to art. Digital art, skin art, themes, wallpaper art, traditional art, photography, poetry / prose. Art prints.

Copies of CT scans

Here are pictures of the CT scans. One is of tyra's lower chest showing the healthy kidney which is small like a kidney bean and the other side is a large mass which is the other kidney that has been totally taken over by the tumor.

the next picture is of her chest and shows both lungs with multipul cancerous growths, the large white circle at the front is her heart, which thank god is clear!

Hospital dates

Found out yesterday that her operation which was on the 31st Aug is now the 2nd Sept! and they couldn't even give me a reason, it's getting very frustraighting the dates changing, this is the fourth time!

Monday, August 9, 2010

Blood test results today all fell dramatically and she is neutrapenic again (no immune system) so keeping a close eye on her ready to whisk her up the hospital if needs be.

Our first Blog Post!

Hello and welcome to Tyra's Blog. We just wanted to get our first entry online, to make sure that all is up and running. We will soon be adding regular updates. Thanks for reading.