Off to Southampton for CT scan under general to map Tyra for radiotherapy today.

Blood test again today, neutraphils at 0.2 so no immune system again, great with all the colds going around. Off to southampton tomorrow to see the radiologyst and find out the long and short term side effects of radiotherapy.

Been very grumpy today, have a slight cold so going to have to keep an eye on her temperature. Blood test tomorrow to see how her levels are.

Thank you

Just want to say thank you to kev pierce and his friends for the sponsored cycle round the island they did today. You're all lovely. X

It's a good job I chased Southampton today as they've changed the dates for her CT scan! Now on thursday at 9am and an appointment on tuesday with the radiotherapy consultant! We were expecting to go on friday.

Chemo today, also new feeding tube and she was so brave. So proud of her!

Poor little thing was sick last night and her feeding tube came out, so going to have to get another put in asap.

My princess

Had a good day today so far, eaten all her lunch which is great as I was starting to worry about her eating again. Slight hair loss again but there's still a layer hanging on...

Tyra had the chemo in Southampton on wed and we got the histology results. There are 28 more weeks of chemo to come and they still want to do radiotherapy to the abdomen and lungs, which will have to be under ga every day as she won't keep still for long enough on her own. Ct scan booked on the 1st oct to set up radiotherapy. Got a couple of names to try and get her pink wig so will chase that up next week. She's doing ok at mo feeling a bit sick but on medication for that.

Off to Southampton for chemo and results of histology, let's hope results are good!

Chemo went ok on Wednesday, due to go to Southampton on this Wednesday for a triple chemo including the four hour drip and hopefully the results of the biopsy. Then we should find out the future plan for the rest of the treatment. All still up in the air! We're feeling totally drained at the moment.

Operation successful

We've just got back from the kidney removal operation in southampton. All went well and she is recovering so quickly. Huge scar but nothing we can do about that. Straight back on chemo now and in a couple of weeks radiotherapy will start...it's never ending.